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Introduction:2月28日是国际罕见病日,马凡综合征在国家第一批罕见病目录121个病种中,位列第68位。马凡综合征虽为罕见病,发病率低,却夺走了很多人的生命,让人惋惜。上海德达医院已连续举办8年“全国马凡综合征病友大会”,发起了马凡慈善……
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